A device to help people with movement disorders, such as dystonia, to measure their daily condition.
People with diabetes can measure their blood sugar as needed. People with high or low blood pressure can at home measure blood pressure. Those with heart irregularities can check their pulse.
Those with movement disorders have however no scientific way of regularly tracking if their tilt, pressure, spasms are worse or better. There is no metric for pain. This gap makes it very hard for patients to know if the condition is worsening, improving, spreading, in remission. They have no way of easily tracking whether a treatment is working, whether an exercise program, diet or medication is helping. They have no way of assessing claims of any alternative treatment being suggested to see if it is worth considering.
Such feedback would be a vital part of their confidence and comfort. It would be a useful resource they could communicate to doctors at appointments to help inform future action.
Some devices have already been created over the years that may be adaptable to this use
-smart phone apps to monitor sleep could possibly be used to detect spasms and movement during sleep
-smart phone apps for runners that already track speed and gait could be adapted to track movement of patients walking
-mats, videos of athletes might be adaptable to test for balance and gait of patients
– mechanics factories may have devices that measure pressure placed on a surface and could help determine the natural pressure that is pushing down on the head, chin, neck of a patient.
-face recognition apparatus very sensitive to head and other angles could be adaptable to determine head tilt along the many axes a head can tilt at and to determine range of motion
-recording devices for voice recognition could help assess the voice quality of a person with dystonia of the vocal cords and whether it changes and when
-the eye equipment of ophthamologists could be adapted to help patients determine technically at home whether their vision is becoming double, whether their gaze is direct, of if their field of vision is getting limited or improving
Biomedical Engineers around the world could surely help create such scientific daily measures for people with movement disorders. A door is opening wide for such inventions.