**LINK TO FULL SURVEYS**

For each survey click on the link, go through the pages at your own speed, skip questions as you wish, and when done, click ‘Done’ so that survey is entered into the system. You must click “Done” to complete the survey. Take your time – you can return to this menu and complete any other surveys you wish at your convenience, just always click “Done” when you are finished. The surveys will be available until May 2021. As of November 2020, half way through the project, over 1300 surveys have been completed! Thanks to all who took part so far and keep it up! A few new question ideas and improvements have been suggested since, so there is now also a Supplemental Surveys section on the menu. Feel free to also consider doing some of those.

Here are the links to the surveys with average times to complete.

Survey 1: Short short survey (number of questions – 25) 5 mins.

https://www.surveymonkey.com/r/2QSKRQ7

Survey 2A: Symptoms (number of questions –  40) 12 mins.

https://www.surveymonkey.com/r/CVDBW59

Survey 2B: Symptom progression (number of questions – 17) 6 mins.

https://www.surveymonkey.com/r/CLBKNFG

Survey 3A: Effect on daily life (number of questions – 33) 10 min.

https://www.surveymonkey.com/r/CLD96LP

Survey 3B: Daily life and mobility (number of questions – 12) 4 min.

https://www.surveymonkey.com/r/C8PSL76

Survey 4: Sensory tricks and times when dystonia is easier (number of questions – 24) 7 min.

https://www.surveymonkey.com/r/C8JT523

Survey 5: Eyes (number of questions – 22) 7 mins.

https://www.surveymonkey.com/r/CKMFYK6

Survey 6: Face (number of questions – 34) 4 mins.

https://www.surveymonkey.com/r/CKY3BD6

Survey 7: Jaw, mouth, tongue (number of questions – 24) 8 mins.

https://www.surveymonkey.com/r/25BSM22

Survey 8: Vocal cords (number of questions – 41) 5 mins.

https://www.surveymonkey.com/r/25D9QKD

Survey 9: Neck (number of questions – 32) 13 mins.

https://www.surveymonkey.com/r/2ZG6KQ5

Survey 10: Shoulder, arm (number of questions – 18) 3 mins.

https://www.surveymonkey.com/r/2ZYJKND

Survey 11A: Hand, fingers (number of questions – 33) 9 mins.

https://www.surveymonkey.com/r/26BYYZK

Survey 11B: Hand, fingers (number of questions – 13) 4 mins.

https://www.surveymonkey.com/r/26W882P

Survey 12A: Leg, foot, toes (number of questions – 60) 9 mins.

https://www.surveymonkey.com/r/26KH5CJ

Survey 12B: Trunk (number of questions – 54) 6 mins.

https://www.surveymonkey.com/r/2PWQ2B6

Survey 13: Ways of coping (number of questions – 53) 8 mins.

https://www.surveymonkey.com/r/2HB5BZL

Survey 14: Medical tests and treatments (number of questions – 69) 8 mins.

https://www.surveymonkey.com/r/2H72TDV

Survey 15: Effects and side-effects of treatments (number of questions – 62) 8 mins.

https://www.surveymonkey.com/r/2BTHPFN

Survey 16: Alternative and nonstandard treatments tried (number of questions – 31) 3 mins.

https://www.surveymonkey.com/r/2G3FJMF

Survey 17A: Moods and emotional supports (number of questions – 73) 11 mins.

https://www.surveymonkey.com/r/2G8RF9T

Survey 17B: Moods and emotional supports (number of questions – 74) 9 mins.

https://www.surveymonkey.com/r/23XTYLL

Survey 18: Describing dystonia (number of questions – 26) 3 mins.

https://www.surveymonkey.com/r/239329K

Survey 19: Possible causes (number of questions – 85) 11 mins.

https://www.surveymonkey.com/r/2F37VGX

Survey 20A: Controversial issues (number of questions – 43) 24 mins.

https://www.surveymonkey.com/r/2FJP3RH

Survey 20B: Controversial issues (number of questions – 47) 9 mins.

https://www.surveymonkey.com/r/2FKRKF2

Survey 21: My outlook (number of questions – 34) 8 mins.

https://www.surveymonkey.com/r/2X6RJQL

Survey 22: Personal identifiers (number of questions – 13) 1 min.

https://www.surveymonkey.com/r/2MGQQRV

Don’t forget to also look at the Supplemental Surveys one more go-section of the menu for the additional questions to consider. Thanks again!

If you would like a pdf of the surveys, or to be contacted with results of the survey when they are available after May 2021 contact the web designer.