Mainstream Media
ABC
2010 March 15 Dystonia
2010 April 8 Dystonia Deconstructed
2013 Feb 15 Dystonia Treatment
ABC Australia
2019- Sept 9- Misunderstood
Associated Press
2009 June 29 Musician outwits focal dystonia
2019 Nov 18 Michael J. Fox honors dystonia researcher
2020 Feb 19 -Growth factors of botulinum toxin market size
BBC
2016 Aug 17 Lack of help for neurological problem
2017 Sept 20 Dystonia: telling my wife
2017 Oct 20- Kaye Adams Show Radio Scotland
2018 Feb 11 Dystonic chronic pain, incurable dystonia diagnosis
2018 June 19 Imagine losing your ability to speak
2019 Sept 24 Paracheer
Boston.com
unknown date – Glimpses of Alix
Bristol Gazette UK
CBC
2016 Feb 25 The brain may be the cause/ brain plasticity
2018 Jan 4 Why LB had to relearn
2018 Feb 20 Making tiny paintings
CBS
2011 May 27 guitarist’s playing hand
2015 April 22 woman misdiagnosed with cerebral palsy
2019 Dec 8 – CS has died
CNN
2009 June 11 fight – little known disorder
2013 June 28 Mysterious disorder, dystonia, a life sentence
2018 June 15 The radio man without a voice
CTV
2013 The Inside Story: Dystonia
2015 July 3 Woman shares inspirational story
2016 July 20 Two year old battling
Daily Mail UK
2011 Sept 28 Dystonia: flamingo lady
2014 March 20 Woman runs backwards
2015 April 23 JA speaks about her dystonia
2016 Dec 19 Children with dystonia/ generalized dystonia
2017 Sept 9 Australian backpacker who loses control of his body
2019 July 11 Two year old becomes the youngest patient..
Daily Telegraph Australia
2016 Dec 19 – Children struck down by muscle disorder
ESPN New York 98.7 FM
2008 March 13 Botox cures the yips
M2014 Aug 11 W. forced to retire with dystonia
Express / Daily Express UK
2010 May25 Why I’m walking tall at last
2010 July 27 I’ve been shivering all my life
2020 March 14 Casualty actor
2015 July 5 LN brain hemorrhage
Fox News
2012 March 29 Treatment for dystonia in musician
2013 Feb 26 Mysterious muscle disorder
2019 Sept 17 JD has dystonia
2019 Sept 28 – Dystonia: smiling through the pain
Global News
2015 May 13 Is your dog a genius?
2016 July 19 Child’s rare condition
2017 Jan 25 Edmonton woman worries AHS decision
2017 Sept 22 National dystonia awareness week
2018 April 2 Long waits for effective treatment
2018 Sept 15 Calgary symposium
Globe and Mail
2011 Nov 20 Dystonia: stepping out of the shadow
2015 March 6 After 7 years of debilitating muscle spasm
2015 March 8 Choosing music
Herald Sun, Australia
2011 March 3 Jaimee’s tied up in red tape
2011 Oct 7 Brave Brooke
2016 Sept 17 A. Bryans
Hindustan Times
2009 Feb 18 Now a pacemaker for the brain
2012 Sept 23 Docs put 4 electrodes in man’s brain
2017 July 21 The musician was awake
Houston Chronicle
2002 Sept 19 Botox used to treat eye disorder
2005 May 18 Computerized drawing tablet
2007 Jan 30 For better or for worse
2011 June 15 twins’ recovery
2014 Jan 29 Determination, treatment helped pianist
Irish Examiner
2018 March 28- Pioneering genomics
2018 Dec 6 The brains behind medical miracle
Ithaca Journal
2017 Nov 26 Dystonia is a frequently misdiagnosed condition
Ivanhoe Broadcast News
2019 Feb 28 back on her feet again; dopa-responsive dystonia
Japan Times
2018 Dec 15 Music as a salve
KCRW Santa Monica
2013 Sept 19 A Hero’s Lie
2017 Dec 24 Could brain surgery save father and son?
2019 March 29 Are we ready for an implant?
2019 Aug 5 Pain rescue team
Kelowna Capital News
2017 Oct 2 Living with a cruel disease, cervical dystonia
KPBS San Diego
2011 Aug 10 Flipside
2015 Oct 1 Dystonia Benefits concert
2017 Dec 24 Could brain surgery save a father and son?
2018 Nov 3 Dystonia day at the San Diego Zoo
2019 March 29 Are we ready for an implant?
KQED, San Francisco
2011 July 4 Patient Specific DNA sequencing
2018 June 25 It’s not all in your head
KSAT.com
2012 April 6 Michael’s miracle
2013 Aug 22 What causes eye twitching?
2014 April 8 DBS for Dystonia
2014 Aug 25 Treating dystonia/ dystonia: the gold standard
2016 July 11 Botox and dystonia
KUOW
2014 June 23 Swedish hospital patient walks again
2019 March 29 Are we ready for an implant?
LA Times
1991 April 8 Deft diagnosi; Segawa’s Dystonia
1991 Oct 16 Dystonia’s miracle worker
2004 July 2 Dealing with Dystonia
2009 April 18 Jewish legacy
2012 April 7 Five Questions
Nashua Telegraph
2018 June 3 Dystance4 Dystonia
2019 May 6 Merrimack woman Dystance4 Dystonia
National Post, Canada
2006 Oct 4 An heir to misfortune
NBC
2005 June 3 Brain massage offers hope
2007 June 17 Brain pacemaker for a rare disorder
2010 Aug 2 Rare disease, dystonia
2012 May 7 Dystonia doesn’t slow woman
2013 Sept 25 Jakes ride for dystonia
2018 May 7 Dopa-responsive dystonia
New York Times
2013 May 19 Disease and the public
New Zealand Herald
2006 Nov 24 S chases a new life
NPR
2011 Dec 25 Father undergoes deep brain stimulation
2017 Dec 24 A father and son share
Oprah.com
2009 March 31 Living with Dystonia
Oxygen, Australia
Issue 99 – Living with Dystonia- My life: a Beautiful mess
Psychology Today
2011 Dec 22 Is left-handedness a disadvantage for musicians?
2013 Sept 13 Yip..e..e..e
2014 March 3 Exercise; the best nondrug treatment for
2016 June 9 Profiles in perseveranc
2016 June 9 Quirky minds: hold me back
2017 Sept 6 What psychology tells us about the brain
2017 Sept 15 Living with a rare disease
Radio New Zealand RNZ
2017 Nov 20 Every day I think my audience
2020 March 17 The joy of making music with family
Runners World
2014 March 14 How running changed me
2018 Jan 18 Runner’s dystonia; mysterious malady
Saltwire.com
2010 Nov 22 Woman upset
Star News Online
2015 March 6 Man with dystonia says’ There’s hope”
Statsnews.com
2020 Feb 10 The vodka trial
Star Tribune Minneapolis
2014 April 18 Patients’ electronic records
2015 May 22 A tale of harp and heart
2016 Nov 5 Twin cities father to undergo
2019 Oct 4 Minnesota tunesmith
Sydney Morning Herald
2006 Sept 24 Crippled patients
2015 June 13 New hope for dystonia sufferers
The Baptist Times, UK
2020 Feb 10 Reaching the places / disability inclusion
The Connection newspapers
2012 Sept 12- Defeating Dystonia
The Guardian UK
1998 April 27 Finger trouble
2000 Feb 14 Life after opioids
2006 Nov 28 Is nothing sacred?
2007 March 9 Pain stopped play
2015 May 16 You think I’m mad?
2016 Dec 19 Genetic breakthrough allows treament
2017 Feb 24 I’m disabled, and my son
2019 July 19 Scottish girl is world’s youngest
The Irish Times
2012 Oct 23 – Hitting the right medical note
2012 Nov 27 – The long road to relief from a big pain in the neck
The Sun.co UK
2017 Oct 27 What is dystonia?
2019 Dec 8 C .S. died
The Telegraph, UK
2004 May 7 Why I just can’t keep still
2016 Dec 19 Children struck down by muscular disorder
2018 June 3 Dystance 4 Dystonia raises awareness
2019 May 6 Dystance 4 Dystonia – woman continues
The Times
2007 July 14 Pulling the wrong strings
The Wall Street Journal
2018 Oct 31 The brain wiring frustrating speech disorder
Toronto Star
2014 March 4 Musicians who work through their injuries
2015 August 2 Relearning now to play the drums
2015 August 25 Drummer with rare incurable
USA Today
2019 December 8- CS, aka Big Bird
Wilmington Star News
2015 May 6 Man with dystonia says “There’s hope”
Washington Post
1998 June 16 Dystonia often goes undiagnosed
2005 May 10 Drawing the line
2012 April 23 I opened my laptop and my eyes snapped shut
2016 Oct 1 My heart breaks 8 million ways
2017 April 9 A Boston marathon record
2017 April 9 A talk show host, a concert pianist, countless golfers
2018 Feb 16 Strange gait troubled this woman
2018 March 9 Pain patients can’t access the medicine
5 News UK
2017 Jan 4 Dystonia
10 News
2020 Jan 5 CBD Oil
Portrayal of Dystonia in Science and Medical Media
Dovepress
2017 Sept 21 Long term quality of life in cervical dystonia
The Lancet
2002 Sept 1 Classification and genetics of dystonia
2006 Sept 1 The diagnosis of dystonia
2006 Oct 1 Treatment of dystonia
2008 June 1 Unravelling the tortuous tale of dystonia
2011 Oct 25 Primary dystonia
2012 June 2 A musician’s dystonia
2017 Feb 1 An epidemic of dystonic reactions
Medical X Press
2011 May 29 For potentially crippling disease
2015 July 21 Treatment hope for dystonia
Medscape
2006 Aug 2 Overcoming dystonia
2016 Feb 15 Torsion dystonias
2018 April 30 Tardive Dystonia
2018 Sept 6 Dystonias
2019 June 28 Dystonia treatment with botulinum toxin
Science Direct and Elsevier
2016 Bridging the gap between action and cognition
2016 Musicians’ Dystonia
The Scientist.com
1999 Feb Recent findings lead to a new understanding of dystonia
2003 April 20 Researchers reveal a new twist in torsion dystonia
Lived Experience With Dystonia 